Check back for more updates as our support group grows
Founder | Director of Scarlett's GABRA1 Village
My journey as a rare disorder mother has inspired me to take action in creating this community when there wasn't one. It all started with a simple hashtag on Instagram and is now evolving into a community I was searching for when we first heard of Scarlett's diagnosis. I'm hopeful that our community will continue to grow as genetic testing becomes more widely available and accessible. Thank you to everyone who has and continues to support our Villagers!